Social Web Directory :: Social Network Directory :: Ning Tips and Ning Support
This website allows you to connect with other families affected by TTTS worldwide! When faced with a rare syndrome it is unlikely you will know how to go about meeting someone who can relate to you in your local area. This website can allow you to find someone close, or just allow you to get whatever you want off your chest online.
This is a safe haven and private social network.
Tons of links and information I have collected over the course of a year from beginning of diagnosis to the present. I have searched for coutnless hours to find all the information to share. We do not give out medical advice... I simply point you in the direction of who is good to talk to and provide a wide range of ways to cope with TTTS.